Sunday, March 31, 2019
March in Pictures
Wrestling
Most of the tournaments were 2-3 hours away, which meant that we had some really early departures on Saturday mornings- the way this kid sleeps in the car cracks me up!
They ended the season by medaling almost every tournament, Eli ended up with a gold, a silver and 2 bronzes and Jace also got a gold, a silver and 2 bronzes. Way to go boys!!
Sunday, March 17, 2019
MRI
We had to wait several days for results, but I wasn't too worried. I was at work when the results showed up on the mychart app and, I'm not gonna lie, I was pretty shaken by them. Hailee has what is called a chiari 1 malformation where the skull is misshapen so part of the brain (cerebellum) protrudes down the spinal canal.
After the initial panic, I reminded myself that my girl is happy, healthy, smart and just generally doing well in life. Nothing had gone wrong, and really, nothing had even changed. We just have some new information.
If symptoms from the chiari malformation get severe or debilitating enough, there are surgical options, but those aren't pretty- and we're nowhere near considering that. The neurosurgeon quickly dismissed her malformation as being in no way related to her eye alignment, but I'm not so sure. While chiari is most commonly related to nystagmus of the eyes, I've read some studies where it can be related to strabismus also (which is what Hailee has), especially strabismus that recurs after corrective surgery. Regardless, I'm certainly not eager to do any surgery right now, be it eye or brain.
For now, the ophthalmologist is having us take pictures of Hailee's eye alignment, morning and night, several times a week, so she can monitor it. It will be interesting to see how things develop with my amazing girl!





































